Envita’s treatment has gotten some attention recently from the parents of children with a particular type of brain tumor, diffuse intrinsic pontine glioma, or DIPG.
DIPG is inoperable due to its diffuse nature and location, which is inside the brainstem. Most of the time, even a biopsy is not possible, DIPG’s are typically diagnosed by MRI and imaging studies.
There is no cure for DIPG, and survival beyond 14 months is rare. New and better treatments for DIPG are urgently needed.
The most commonly used conventional treatment is radiation, which can increase survival time but does not improve the prognosis.
Currently available clinical trials include the use of radiosensitizing agents along with radiation, immunotherapy, and various phase I trials using different chemotherapeutic agents.
With no orthodox treatments available that are effective against DIPG, parents are desperately seeking anything that has a chance of making a difference in their child’s length and quality of life.
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October 6, 2008 at 11:20 am
MICHELLE ADAS
MY DAUHTER MALAYNE ADAMS HAS THIS SHE HAS BEEN FIGHTNG “DIPG” SHE IS A DENTICAL TWIN 3 YEARS OLD SINCE MAY 08 I PRAY FOR ALL AND MY DAUGHTER TO MAKE IT
January 5, 2009 at 8:56 pm
April Federer
Michelle, it’s me, April, from the daycare. I hav been trying to get in touch with you guys for months. I have had no luck. I think about you guys all of the time. My mom asked me about you guys the other day. PLEASE call me at 860-564-6780 at home or at 860-303-5110 on my cell phone. I miss you guys greatly.
March 3, 2009 at 11:39 am
Angie Blevins
Malayne Adams is my beautiful niece I love her with all my heart. I hope the best for my sister Shelly and her family. I love her and I wish the lord would open his heart to Layne Bug and take her boo-boo away, as the kids put it. Malayne honey I love you and I’ll always be here for you! Love your Aunt Angie